Zoe Episode 3
These are a couple of non-typical looks at the behavior of our daughter Zoe at 4 months. Initially diagnosed with Sandifer's Syndrome, now almost a year later, they're unsure what to really call her symptoms since they're atypical and they change over time. While most of her episodes look exactly like seizures (and were wrongly treated as such by several hospitals and Neurologists - see Zoe Episode 1 and Zoe Episode 2), over the course of a year, we've seen things that are also quite different. Here you see a unique episode where she cuts in and out of the trance-like state to scream. That is followed by a brief clip of what we call "aftershocks". Aftershocks occasionally come following an episode after Zoe falls asleep. She'll wake herself up every 15 seconds or so with a motion just like you see here. While these clips are a bit horrifying to look at (especially the first part), this video helped doctors see past their initial (wrong) gut-reaction diagnosis of epilepsy and led them to a Sandifer's-like reaction which would normally be treated just like any other Acid Reflux / GERD infant. However, in our case, GERD treatments have been completely ineffective. We continue to search for medicine, a special diet, or any treatment that will help Zoe. (We have 2 Gastro doctors as well as a Nutritionist working with us on this.) It is probably also important to note that, now at 14 months of age, Zoe is extremely developmentally delayed. We are also without a diagnosis for ...
Video Rating: 3 / 5
Orignal From: Zoe Episode 3
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