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Crohn's disease or what? Need help asap!!!?I'm a 15 year old female and have been sick for the past 1 1/2 years but have had stomach problems for 5 years now. I have went through every blood, urine, and stool test imaginable, endoscopy/colonoscopy, abdominal ct, upper gi, and most recently a sweat chloride test. I'm supposed to be going through a capsule endoscopy soon, and be getting the rest of my test results back (few blood and stool).
I tested positive for antibodies for Chron's, back when the inflammation in my stomach and colon were biopsied the results came back inconclusive. Right after the procedure my GI doc started me on prednisone back has now weaned me off because he is not sure if I have Chron's now. Is it still possible that I have Crohn's?
I also tested high borderline on my sweat test and on the repeat my level was 59 (60 is positive) and am waiting for my blood test results to see if I have cystic fibrosis.
The doctors are giving up and classifying me as having an eating disorder, but I love food, am not afraid of it, and want to gain weight.
What is wrong with me?????
Here are my symptoms ~
* Nausea
* Extremely severe sharp stabbing constant stomach pain
* Diarrhea
* Night fevers
* Headaches in the morning
* Fatigue
* Indigestion and GERD
* Unintentional weight loss (went from 120lbs to 85lbs at 5'8" in about 4 months)
* Back and joint pain in knees and hips
I have been lactose intolerant for 5 years now.
My parents have Kaiser insurance so I am unfortunatly limited to Kaiser doctors.
Also I am on an over 4,000 calorie diet (which consists of 10 carnation instant breakfast 375 cal. shakes plus food) and am still losing a little weight! I gained on the ng tube but lost it once they put me back on oral.
-Bren
hi sorry to hear ur not well. my daughter has had crohns since 12 she is now 25, it took 6 months to diagnose her but it was found in biopsies they took in a colonoscopy. by the time she was diagnosed she was unable to eat anything except chocoalte and fizzy drinks as every time she put food in her mouth she felt full. if u have inflammation associated with crohns the prednisolone should have stopped it my daughter had many courses of prednisolone but now has an infliximab iv infusion every 8 weeks which is keeping it at bay. . have u been tested for coeliac as the symptoms sound like they could be that i have a friend with it and she described yr symptoms i do hope that they doctors do not diagnose an eating disorder and that they get to the bottom of the problem for u. good luck.
-diamondhtrading
It sounds like crohns, but it could be something else. Ask your doctor if you can take "asecole" it is like prednezone but without all the bad side effects.I have crohns and the asacole helped me in just a few weeks, I have been in remission now for 2 years. Drink Ensure, I got the walmart brand and it helped me alot, it will replace all the vitamins and minerals that you are losing....GOOD LUCK
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